FSIG Support Young Adults at International Fabry Weekend in Switzerland

In September 2026, Fabry Support & Information Group (FSIG) proudly supported three members of the Fabry community as they traveled to Switzerland to participate in the Fabry International Network’s Young Adult Weekend.

This special gathering brought together young adults living with Fabry disease from around the world, providing an opportunity to connect with others who understand the unique challenges of navigating life with a rare disease. Through shared experiences, conversations, and activities, participants had the chance to build friendships, exchange perspectives, and realize they are part of a much larger global community.

For young adults living with Fabry disease, connecting with others their own age can be especially meaningful. It creates a space to share experiences, discuss challenges, learn from one another, and build relationships that can last well beyond the event.

FSIG is honored to help make opportunities like this possible. Supporting the next generation of the Fabry community means more than providing information and resources. It means creating opportunities for young people to find their voices, build confidence, and know they are never alone on their Fabry journey.



We are proud of these three young adults for representing the U.S. Fabry community and look forward to seeing the connections and friendships that continue to grow from this experience!