become a member

Join the FSIG Community.

Everyone Needs Community. We Invite You to Join Ours.

Join the Fabry Support & Information Group (FSIG). It's free to become a member! As part of our community, you’ll receive weekly emails with the latest research updates, patient stories, and invitations to educational events and patient and caregiver gatherings. Connect with others who understand life with Fabry disease and stay informed every step of the way.

FSIG Membership is for:

  • Individuals living with Fabry disease
  • Parents and caregivers
  • Family members and loved ones
  • Newly diagnosed patients and those living with Fabry for decades
  • Physician and Researchers


Why Join?

  • Trusted, up-to-date Fabry education and research insights
  • Invitations to FSIG conferences, webinars, and local gatherings
  • Peer connection with others who truly understand Fabry
  • Patient support programs and resources
  • Advocacy updates and opportunities to have your voice heard