Thank you for 30 incredible years.
Here's to the next 30 years of rare, resilience, and community.
Celebrating 30 Years of Support, Strength & Hope
Lisa Bacon • September 4, 2026
This year, FSIG proudly celebrates 30 years of supporting individuals and families affected by Fabry disease. What began in 1996 as a small group of families searching for answers has grown into a global community of strength, hope, and advocacy.
Together, we have raised awareness, advanced newborn screening, supported research, educated families and healthcare providers, and created opportunities for connection that make a real difference.
read the press release here
Looking Ahead
The future is bright because of you. Together, we will continue to build a world where every person with Fabry disease is diagnosed early, treated appropriately, and supported through every step of their journey.
More From FSIG
Explore more news, resources and stories from the Fabry community.
Newborn screening can detect serious rare conditions early. Learn about FSIG’s Testing for Tots program and efforts to add Fabry disease to state screening panels.
FSIG Achieves Candid’s Platinum Seal of Transparency
New Lysosomal Storage Disease Advocacy Coalition Formed to Advance Patient Advocacy
