FSIG Earns Candid Platinum Seal

November 20, 2025

FSIG Achieves Candid’s Platinum Seal of Transparency

Palm trees against a cloudy sky.

We’re excited to share a major milestone for FSIG: we’ve officially been awarded the Platinum Seal of Transparency from Candid, the highest level of recognition offered by the leading nonprofit information resource.


This achievement reflects our ongoing commitment to openness, accountability, and responsible stewardship of the resources entrusted to us. The Platinum Seal is only awarded to organizations that go above and beyond in sharing detailed information about their goals, strategies, impact, and financials—ensuring donors and partners can engage with full confidence.



At FSIG, transparency isn’t just a requirement; it’s a core value. By publicly sharing our metrics, progress, and long-term vision, we aim to build trust and demonstrate the tangible outcomes of our work. Receiving Candid’s Platinum Seal reaffirms that dedication and inspires us to continue raising the bar.

Thank you to our supporters, partners, and community members who help make this work possible. Together, we will keep driving impact—and doing it with clarity and integrity.


Onward and upward!

Nebraska Newborn Screening

September 26, 2024
LSD Coalition Created and Brian Jones is Treasurer 

LSD Coalition Created and Brian Jones is Treasurer

September 26, 2024
LSD Coalition Created and Brian Jones is Treasurer 

September is NBS Awareness Month

September 26, 2024
This September marks the 50th anniversary of newborn screening. Here at the Testing for Tots program, we believe that early detection, diagnosis and intervention can prevent death or disability and enable children to reach their full potential. Rare, and mostly treatable conditions , are screened for within the first 1-2 days after birth. All it takes is a few drops of blood from a heel stick that is then reviewed in the associated laboratory for serious conditions. (The comprehensive newborn screening panel consists of 3 parts – blood test, hearing and pulse oximetry screens). Although these conditions are rare, about 5,000 babies are diagnosed each year with a rare condition. Newborn screening is a critical tool in the belt of the rare disease community. The number of conditions screened vary from state to state. Our team has been working on adding Fabry Disease in multiple states across the nation (Georgia, Massachusetts, South Carolina, Utah, Colorado, Nebraska, and Wisconsin). If you are interested in supporting our initiatives or partnering with us for your home state, email us at testingfortots@gmail.com .