Empowering Women with Fabry

Summit Highlights: Activities, Speakers & Workshops

Expert Keynotes

Leading specialists share the latest research and treatment advances in Fabry disease.

Interactive Workshops

Hands-on sessions on symptom management, mental health, and nutrition tailored for women with Fabry.
Peer Support Circles
Facilitated group discussions fostering connection and shared experiences among attendees.

Inspirational Speakers

Women living with Fabry share personal stories of resilience and strategies for daily life.

Resource Clinics

Access to counseling, genetic counseling, and guidance on navigating healthcare systems.
Wellness Activities
Yoga, mindfulness, and stress reduction sessions designed to enhance overall well-being.

Voices of Strength and Hope

Attendee Stories from the Fabry Women’s Summit

Five black stars in a row.

Attending the summit gave me a renewed sense of community and practical tools to manage my condition. The workshops were insightful and the speakers truly understood our journey.

Emily R.

6 months ago

Five black stars in a row, indicating a high rating or review.

The summit connected me with others who share my experience, breaking the isolation I often felt. The expert panels provided clear answers and hope for the future.

Sofia M.

1 year ago

Five black stars in a row, rating or ranking.

I left the event feeling empowered and informed. The personal stories and medical insights helped me advocate better for my health and wellbeing.

Lena K.

8 months ago

Five black stars in a row.

The workshops were practical and uplifting. Meeting others who truly understand Fabry disease made a lasting impact on my outlook and daily life.

Maria T.

10 months ago

Frequently Asked Questions

Find answers to common questions about the Fabry Women's Summit, including registration details, venue information, and accommodation options to help you plan your visit.

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How do I register for the summit?

Registration is available online through our official event page. Early registration is recommended as spots are limited. Confirmation emails will be sent upon successful sign-up.

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Where will the summit take place?

The event will be held at the Radisson Blu, located directly beside the Mall of America in Minneapolis with easy access to public transportation and nearby amenities.

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Are accommodations provided for attendees?

Yes with your minimal registration fee, two nights at the Radisson Blu will be included.

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Is there support for travel expenses?

Limited travel grants are available for women affected by Fabry disease. Applications can be submitted during registration and are reviewed on a case-by-case basis.

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Will there be virtual participation options?

Yes, select sessions will be live-streamed for remote attendees. Access details will be provided to registered participants closer to the event date.

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Who can I contact for more information?

For additional questions, please reach out to our event coordinator via the contact form on the website or email support@fabry.org.

Plan Your Summit Experience

Use this FAQ to prepare for the event and make the most of your time connecting with others in the Fabry community.

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Get Involved

Support the Fabry Community and Join the Summit

Contribute to advancing awareness and resources for women living with Fabry disease by participating in our summit or supporting our initiatives. Whether you register to attend, volunteer, or share your story, your involvement strengthens the network of care and knowledge. Together, we can create meaningful change and empower every woman affected by Fabry.

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Fabry Disease: Key Facts and Figures

Fabry disease affects approximately 1 in 40,000 individuals worldwide, with symptoms often overlooked or misdiagnosed. Early detection and treatment can significantly improve quality of life for those impacted.
1 in 40,000
Global prevalence of Fabry disease
60%
Percentage of women who experience significant symptoms
10+
Years average delay in diagnosis for many patients
70%
Of patients report improved well-being after targeted therapies