Financial Resources
Resources to Help You Access the Care You Need
Everyone’s Fabry journey is different, and the support you need should reflect that. With FSIG's Fabry Assist and other resources, you’ll find programs designed to help with coverage, treatment questions, emotional support, and everyday challenges. We’re here to connect you with the right tools and people so you can move forward with confidence.
Fabry Assist Program
The Fabry Assist program is intended to provide funding for those with Fabry in need of help who live in the USA. Fabry Assist is designed to help assist patients in areas other programs do not cover.
To date Fabry Assist has been providing needed assistance since 2010. Over the years FSIG has received hundreds of requests asking for help with a wide variety of issues. Whether it is reaching an area patient meeting, getting to a Fabry specialist evaluation, or complementing another assistance program, Fabry Assist is here to help.
To ensure the limited funds are directed to those with the greatest need, we rely on verification of necessity from a number of sources that may include a doctor’s office or other sources. Fabry Assist is intended for one-time, short term or infrequent needs. It is not available as a long-term funding solution. If FSIG is able to assist you, we will make the payment to the institution providing the service. FSIG does not make payment or reimbursement directly to the applicant.
Please see below for examples of areas of support.
- Limited transportation to Fabry meetings
- Cooling vests
- Fabry testing
- Fabry related medical bills (past due bills missed by co-pay assistant plans)
- Non-pharmacy medical expenses (compression stockings, eye glasses, dentures, hearing aids)
- Other types of assistance
Drug Copay, Insurance Premium and Travel Resources
The organizations listed below offer support for individuals with both public and private insurance. View a quick overview below but please contact each one directly for details on how they can assist.
List of Services
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Accessia HealthList Item 1
- Diagnosed with Fabry
- Publicly or privately insured or uninsured
- Household income <500% of FPL
- Health insurance premiums
- Prescription drug coverage
- Travel reiumbursement up to $500
- Assessments if Fabry related
- Dental care (some states)
- $4,500 yearly cap
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NORD Rare CareList Item 2
- Diagnosed with Fabry
- Publicly or privately insured or uninsured
- Household income <400% of FPL
- Health insurance premiums for affected family member only
- Prescription drug coverage
- Travel reiumbursement
- Assessments if Fabry related
- Caregiver respite program
- Annual cap based on availability
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PANList Item 3
- On FDA approved Fabry medication
- Reside and receive treatment in the United States or U.S. territories.
- Have health insurance that covers your qualifying medication or product
- Household income <500% of FPL
- Health insurance premiums for affected family member only
- Prescription drug coverage
- Travel reiumbursement up to $500
- Annual cap of $6,000
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The Assistance FundList Item 4
- Diagnosed with Fabry
- Public or private insurance or uninsured
- Household income <700% of FPL
- Health insurance premiums for affected family member only
- Prescription drug coverage
- Travel reiumbursement up to $500
- Genetic testing assessments
- No annual cap
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Amicus Assist
AMICUS ASSIST® is a patient support service that delivers product assistance, educational resources, and ongoing support for individuals prescribed Galafold.
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Chiesi Total Care
CHIESI TOTAL CARE is a patient support service that delivers product assistance, educational resources, and ongoing support for individuals prescribed ELFABRIO.
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Sanofi Care Connect
SANOFI CARE CONNECT PSS is a patient support service that delivers product assistance, educational resources, and ongoing support for individuals prescribed Fabrazyme.
