2026 FSIG Expert Fabry Conference Agenda
Friday, April 10
3:00 - 6:30 PM Registration
- Stop by any time to check-in with us and get your registration information and name badge for the conference.
5:30 PM Fabry 101
- Just been diagnosed? Want to freshen your memory on the basics of Fabry Disease? Come join us!
6:30 PM Meet & Greet Dinner
Saturday, April 11
7:00 - 8:00 AM Breakfast
8:00 AM Registration Open
- Networking opportunity for attendees to connect before sessions begin.
8:15 AM Welcome
- Welcome by FSIG leadership, overview of conference goals, and acknowledgment of sponsors.
8:20 AM Sponsor Spotlight Live
- A fun way to get to know our top sponsors. Introductions and a led discussion with the selected speakers from the Diamond and Platinum sponsors.
9:00 AM Keynote Address: Innovations in Fabry Disease Therapies
- Overview of recent breakthroughs in enzyme replacement therapy (ERT) and gene therapy.
9:45 AM Morning Break & Networking
10:00 AM 30 Year Anniversary
10:06 AM Panel Discussion: Navigating Clinical Trials in Rare Diseases
- Insights from researchers, regulatory experts, and patient advocates on accelerating trial designs and patient recruitment.
10:46 AM Industry update
11:00 AM Panel Discussion: Current Challenges in Monitoring & Treating Fabry
11:45 AM Industry updates
12:00 PM Lunch
1:00 PM Move Your Body
1:30 PM Workshop: Enhancing Patient-Provider Communication
- Strategies for improving dialogue between healthcare providers and Fabry patients.
2:00 PM Industry Updates
2:30 PM Breakout Sessions
- Session A: Pediatric Care in Fabry Disease
- Session B: Adult Diagnosis & Treatment
- Session C: Genetic Counseling and Family Planning
6:15 PM Group Photo
6:30 PM Dinner & Recognitions
Sunday, April 12
8:00 AM Continental Breakfast & Networking
9:00 AM Patient Story Session
- A Fabry patient shares their journey, challenges, and experiences with current treatments.
9:35 AM Roundtable Discussions:
- Roundtable 1: Newborn Screening & Patient Stories
- Roundtable 2: TBD
- Roundtable 3: Needs Assessment
10:51 – 11:00 AM Closing Remarks
