Subject:Newborn Screening Saves Lives Reauthorization Act
Date: 07/23/2019
Time: 01:07 PM
Body:Dear Fabry Community,
 
I hope you are doing well.  The rare disease community has been closely following the progress of the Newborn Screening Saves Lives Reauthorization Act under consideration in Congress for a five-year renewal. We are sharing the following information so you might consider engaging your federal representatives in support of this pending legislation.

The bill is now moving through the House of Representatives (H.R. 2507, sponsored by Congresswoman Lucille Roybal-Allard (D- CA), is expected to be voted on by the full House on Wednesday July 24) and has just been introduced in the Senate (S. 2158 by Senators Maggie Hassan (D-NH) and Cory Gardner (R-CO). For more information on newborn screening and the bill, please visit: https://everylifefoundation.org/newborn-screening/. It is hoped that this bill will move quickly through the Senate before its upcoming summer recess.  The following link (https://everylifefoundation.org/voter-voice/) will enable you to easily ask their Senators and Representatives to co-sponsor this bill.

Thank you for your consideration of this matter,
Jack

FSIG
Fabry Support & Information Group