Subject:Fabry and Lymphedema
Date: 05/01/2018
Time: 07:32 PM
Body:Hello! I was curious if anyone else is experiencing issues with Lymphedema? The majority of the literature I have located indicates that Lymphedema is common in the lower extremeties of Fabry patients. In the past, I always attributed this to kidney function. Unfortunately, my lymph issue is global. My thoracic duct is not working properly and I am retaining lymph fluid throughout my body at an unbelievable rate. I am currently going to a Lymphedema specialist twice a week for therapy, but there is a growing concern over how much fluid I am retaining and how it is interfering with my heart, lungs, vision, etc. I would appreciate any advice you have to offer!