Links to Additional Fabry Websites & Resources




This page contains links to additional Fabry and related websites which may be of interest or help to those seeking a support group or information in a particular country or language. The FSIG website and support group is not limited to those in a particular geographic region and wishes to facilitate access to the most appropriate and desired resources.


Brazilian Association of Fabry Disease
Canadian Fabry Association
Canadian Organization for Rare Disorders (CORD)
Belgium - BOKS
Denmark - Fabry Patientforening
England - MPS Society
Fabry International Network - International
Fabry Support Group Australia
Fabry Support & Informatie Groep Nederland
Finland - MS liitto
France - APMF
France - VML - Lysosomal Storage Disorders
Hungary - Fabry Disease
Hungary - Foundation for Patients with Fabry Disease (HUFPFD)
Italy - GIPF
Italy - Aipaf
Japan Fabry Disease Patients and Family Association
LDA - Lysosomal Diseases Australia
Morbus Fabry - Germany
National Fabry Disease Foundation
Norway - Pasientforening
Poland - Stowarzyszenie Rodzin z Chorobą Fabry'ego
Slovak Republic - Association of Rare Genetic Diseases
Spain - ADAC Association
Spain - MPS Association
Swiss - Fabrysuisse
Genetic Alliance
Global Organization for Lysosomal Diseases (GOLD)