0
Empowering Lives Through Support
Fabry Support & Information Group
At Fabry Support & Information Group, we are dedicated to providing essential resources and a compassionate community for individuals affected by Fabry disease. Our mission is to enhance the quality of life for patients and their families through education, advocacy, and support.
FSIG is changing the future of Fabry Disease.
The Fabry Support & Information Group (FSIG) represents a shift in the Fabry community from isolation and limited knowledge in the past to empowerment, collaboration, and forward-looking progress today. In the early years, Fabry disease was poorly understood, support networks were minimal, and families often navigated diagnosis and treatment alone. FSIG has transformed that landscape.
Years Helping Families
Patient Meetings
Patient Stories
Voices of the Fabry Community
Shared experiences that remind us we are not alone.
This is a very rare disease, so there is not a lot of outside support for people who suffer from it. FSIG (Fabry Support Information Group) succeeds in making people with Fabry Disease feel supported and less alone. They help people emotionally as well as financially. Their work is unparalleled in the Fabry community and I know people with the disease are incredibly grateful for all they do.
Abbinventura
I met Jack Johnson, the founder of FSIG, in my mid-20's and I'm now 52. It has been great resource to have all these years. Keeps me very informed on all the developments in the treatment of Fabry and managing my own health issues.
DanTheMano
FSIG has never turned me down when I needed help to get to my appointments in Seattle, WA. We have stayed at the same hotel for 5 yrs. The manager always compliments about how loving and kind FSIG is for helping us each year. THANK YOU for being there for us!
Ausga58
Your mental health matters, too.
Living with Fabry affects more than the body. Support, understanding, and connection can make a meaningful difference.
Testing for Tots
A Healthier Future Begins on Day One
Newborn screening for Fabry disease enables timely care, better outcomes, and healthier futures.
CONTACt US
Reach Out to Fabry Support for Expert Assistance!
Contact Fabry Support for expert help! Our team is ready to assist with any questions you have. We're just a call or message away.
